Wednesday, August 1, 2012

Treatment Timeline

I will begin this journey by sharing my SIJD story. 

May 5, 2008: pain begins in late pregnancy – visit PCM (Primary Care Manager)

July 1, 2008: physical therapy

August 2008-early 2009:  PCMs try oral medications, no effect

January 2009:  PCM orders chiropractic consult, only for active duty military, so continue oral med experimentation

June 2009: x-rays at army hospital, and MRI at civilian hospital.  L4-L5, L5-S1 osteoarthritis and degenerative disc disease.  PCM wants to keep trying oral meds.  No effect.

August-September 2009: chiropractic (out of pocket) for lumbar.  No effect.

November 2009 – January 2010: two separate injections (one in Nov, one in January) at pain management, both times at L4-L5 & L5-S1.  No effect.

February 2010: physical therapy begins for lumbar, no effect.  PT switches to treatment for SI Joint – first relief ever experienced.  However, relief is minor and short-lived.

February 2010 PCM orders MRI of hips – normal.

March-April 2010: chiropractic (out of pocket) for SI Joint –provides minor, short-lived relief.

Late April 2010: third injection, in SI Joint as well as L4-L5.  No effect.

May 2010: buy inversion table per pain management instructions, no relief – increased pain in right buttock when inverted.

May 25, 2010: bone scan at Army Hospital - normal

June 1, 2010: fourth injection,on right side of L4-L5.  Minor relief of aching pain allowing sitting for a little longer (still no standing or walking for any length of time), relief lasted 2 weeks.  No relief of sharp pain in buttock.

June 29, 2010: orthopedic appointment.  Opinion is also that it is SI Joint causing the problem, with poor prognosis.

July 6, 2010: fifth injection, at S&W pain mgmt, in SI Joint – numbing agent gave relief for 1.5 hours.  Medication changed from Gabapentin to Lyrica.  Started sleeping on ice. 

August 4, 2010: neurology appt.  His physical exam indicated no nerve root damage, but he wasn’t familiar with the treatments I asked about for SI Joint Dysfunction.  Did not offer any solutions or treatments to try.

August 9, 2010: sixth injection, at S&W, this time a caudal catheter in low back and another injection at SI Joint.  50% relief for the next two weeks.  Ice sleeping reduced. 

November 23, 2010: seventh injection series @ S&W: injections on the right side of spine from L4 down to S2.  Diagnostic for RFA (Radiofrequency Ablation).  75% relief first day.  Minor relief in the week following.  Schedule RFA for Feb 2, but insurance denies authorization.  Resubmit RFA request, RFA denied second time.  Medication changed back to Gabapentin from Lyrica, which had no effect.

February 22, 2011: same injections as Nov 2010, in addition to an SI Joint injection.  No significant relief.  Pain continues to increase.  Continue sleeping on ice or heat, depending on how the pain responds.

March 15, 2011: Found a doctor familiar with SI Joint Fusion Surgery in Tyler, TX – Joseph Conflitti.  Dr. Conflitti performs examination and reviews case history and medical records.  Confirms Sacroiliac Joint Dysfunction.  Performs pre-op evaluation for SI Joint Fusion surgery.  RFA request resubmitted again and denied again, appealed and denied a fourth time.

May 24, 2011: ninth injection series – 5 injections on the side (branches) of L4 down to S2.  Additional injection in SI Joint.  Minor, short-term relief.  Surgery request denied.

July 13, 2011:  Received fifth and final denial letter for RFA procedure.  Proceed with surgery which was appealed and approved in June.  www.si-bone.com for the procedure details.  Could not bear weight for 6 weeks post-op.

August 19, 2011: Post-op exam in Tyler with Dr. Conflitti.  Pain still continues but it is too early to call the surgery success or failure.  Conflitti confirms that if my pain has not improved by 6 months post-op, it very likely will never improve.

September 13, 2011: Tenth injection, @ S&W, this time in the piriformis muscle for Piriformis Syndrome, a common problem alongside SI Joint Dysfunction.  Piriformis Syndrome causes sciatic pain.

September 22, 2011: Post-op physical therapy evaluation.  PT states recovery will be 2 – 3 years.  Physical therapy begins on September 27.

September 27, 2011: PCM visit for walking cane prescription

November 10, 2011: Eleventh injection series @ S&W – branch block right side of L4/L5 and S1.  Relief of pain for several hours (not of sciatic pain however).  PT is continuing twice a week.

January 2012: Finally feel better post-op than pre-op.  PT discontinued due to significant progress.  No nerve pain, just muscle spasms.

March 6, 2012: Botox injection in piriformis at pain mgmt.  80% relief for 8 weeks.  Discontinue all meds except Motrin and occasional Flexeril.

June 2012:  Begin walking 1 mile several times weekly.

June 11, 2012: Botox injection in piriformis at pain mgmt.  80% relief.

July 2012:  Pregnant.  On Tylenol only at this point.